Other links/sites to check out:
www.mpssociety.org The MPS Society's official website. The MPS Society is a great national resource for information, support and financial assistance to families dealing with MPS diseases.
www.teamsanfilippo.org A group of families joined together to raise funds and further research into viable treatments for children suffering with Sanfilippo Syndrome.
www.jonahsjustbegun.org One family in New York that has created a foundation to fund research and has collaborated with doctors and other parents in Europe as well.
www.bensdream.org Another family organization determined to fund research to find a treatment/cure for Sanfilippo Syndrome.
www.teamsanfilippo.org A group of families joined together to raise funds and further research into viable treatments for children suffering with Sanfilippo Syndrome.
www.jonahsjustbegun.org One family in New York that has created a foundation to fund research and has collaborated with doctors and other parents in Europe as well.
www.bensdream.org Another family organization determined to fund research to find a treatment/cure for Sanfilippo Syndrome.